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The ​Caregiving Youth Research Collaborative (CYRC) is a US-focused research network that aims to advance understanding of the lives of Caregiving Youth and their families. A 2005 national study, “Young Caregivers in the US” estimated between 1.3 to 1.4 million youth between the ages of 8-18 years, are doing some level of caregiving. Their caregiving responsibilities are for a family or household member who has a chronic health condition, functional decline from aging, or a disability.  The person in need of care lives either in the home or close by. In a later study, “Family Caregiving in the US, 2020” reported that the number of children assisting in caregiving increased to more than 5.4 million.  Soon, the GAO (Government Accounting Office) will be conducting a new national study about Caregiving Youth.  This new research will include the impact on Caregiving Youth including academically and personally.

Meanwhile, the CYRC members have reconvened, thanks to the leadership and research of Dr. Elizabeth Olson, and others who work in higher education and clinical practices across the country with interdisciplinary professional expertise spanning the sciences and humanities.  The 2022 members of the CRYC and their affiliations are listed below.  If you are interested in learning more and would like to become a member of the CYRC, please contact Dr. Elizabeth Olson or Dr. Connie Siskowski.

The research on Caregiving Youth in the US is growing. AACY established the Caregiving Youth Research Collaborative, a US-focused research network that aims to advance understanding of the lives of Caregiving Youth and their families. The goals are to facilitate new studies, research, and publications on this population. Multidisciplinary professionals in social sciences, social work, nursing, medicine, psychology, and others contribute to these efforts, leading to a greater understanding of this significant population.

Featured publication by members of the Caregiving Youth Research Collaborative below:

Additional Research, Scholarly Articles & Published Studies on Caregiving Youth are located on the Resources Page

Andrea Kalvesmaki, PhD
University of Utah Health, Salt Lake City, UT

Bailey A. Hendricks, PhD, RN
University of Nebraska Medical Center, College of Nursing, Omaha, NE

Brianna Bliss, PsyD
Philadelphia College of Osteopathic Medicine, Philadelphia, PA

Connie Siskowski, RN, PhD
American Association of Caregiving Youth, Boca Raton, FL

Elizabeth Olson, PhD
University of North Carolina, Chapel Hill, NC

Emma Armstrong-Carter, PhD
Tufts University, Boston, MA 

Feylyn Lewis, PhD
Vanderbilt University School of Nursing, Nashville, TN

Gabriella Anna Llano
University of Miami, Miller School of Medicine, Miami, FL

Hannah Hutler-Boyd
Hidden Helpers, Elizabeth Dole Foundation, Washington, DC

Julie Belkowitz Lichtenstein, MD, MPH
University of Miami, Miller School of Medicine, Miami, FL

Katherine Miller, PhD
University of Pennsylvania Perelman School of Medicine, Philadelphia, PA

Kimberly Peacock, EdD
University of Texas Health Science Center, San Antonio, TX

Leiha Edmonds
University of North Carolina, Chapel Hill, NC

Maggie Ornstein, PhD
Sarah Lawrence College, Bronxville, NY

Marianne Saragosa , PhD, RN
University of Toronto, Toronto, Ontario, Canada

Melinda S. Kavanaugh, PhD, MSW, LCSW
University of Wisconsin, Milwaukee, WI

Michelle Sherman, PhD, LP
University of Minnesota, College of Medicine Minneapolis, MN

Priscilla Boerger, EdD
Regis College, Weston, MA

Sharon Hamill, PhD
California State University, San Marcos, CA

Our programs rely on contributions from our community.

If you are able to donate to American Association of Caregiving Youth, please do so here.

If you are able to volunteer for our programs or at our events, contact us here.

Thank you!