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Resources for Caregivers of All Ages


A Place for MomA Place for Mom launched in 2000 to give seniors and their families an easier way find senior care. Although our company name focuses on "mom," we help dad too! As well as uncles, aunts, brothers and sisters - anyone who is faced with finding the best senior living options for their loved ones. www.aplaceformom.com


Adult Day CareAdult Day Care -Adult day care centers are senior care locations that are open during normal business hours and provide various care services, supervision and social interaction for the elderly. Seniors generally attend adult day care on a scheduled basis which can provide relief to caretakers, such as family members or caregivers. Seniors who attend adult day care can benefit from the increased companionship and social interaction with others. www.adultdaycare.org/


American Alzheimers logoAlzheimer's Association - seeks to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. 1-800-272-3900 www.alz.org


Alzheimer's Foundation of America Alzheimer's Foundation of America The Alzheimer's Foundation of America's mission is ”to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.” www.alzfdn.org


Alzheimers for teensAlzheimer's Foundation of American Teens - seeks to mobilize teenagers nationwide to raise awareness of Alzheimer's disease and to engage teenagers in the cause. 1-866-AFA-8484 www.afateens.org


American Psychological Assoc logo The American Psychological Association’s Family Caregiver Briefcase is now available at http://www.apa.org/pi/about/publications/caregivers/index.aspx.  An online resource for those who work with family caregivers, the Briefcase can help professionals recognize, anticipate, and reduce the stresses on family caregivers across the life span.  It provides guidance on how to assist caregivers through individual and organizational practice, research, teaching, and community service.  Segments of the briefcase are also useful for family caregivers. 


archrespiteThe ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center which is funded by the Administration for Community Living, Administration on Aging (AoA) in the US Department of Health and Human Services.  www.archrespite.org


autismparentingmagazineAutism Parenting Magazine asks: Are you looking for Autism Resources to help you and your child? With its vast amount of data and accessibility, the Internet has become a powerful tool in the search for up-to-date information. Chances are, however, you don’t have the extra time needed to filter the infinite amount of autism resources and information as you balance daily life. Here's a good resource.


The Caregiver Action Network - offers free membership for all family caregivers and benefits including formation, education, publications and advocacy. 1-301-942-6430 www.caregiveraction.org/



cancerallianceThe Caregiver Alliance at Mesothelioma.com provides Caregiver Resources for Financial Planning, Health Insurance Planning. Long Term Care Planning, Long Term Housing, Patient Transport, Cancer Support Services, Counseling Resources, Spiritual Guidance, End of Life Planning, Support for Caregivers, and Mesothelioma & Cancer Books.  http://www.mesothelioma.com/treatment/resources/



CG Space LogoThe Caregiver Space is an online community for caregivers of all ages. As an initiative of the Caregiving Youth Institute to connect children across the United States who are caring for ill, injured, elderly or disabled family members, the American Association of Caregiving Youth® now hosts a Caregiving Youth Forum and a biweekly chat on The Caregiver Space. You may access both the forum and the chat by registering for free at http://thecaregiverspace.org/

reversemortgageThe Caregiver Guide- An Introduction to Elder Care  There's a lot to cover, and the Reverse Mortgage Alert  put together this guide to cover these topics. Whether you are about to become a caregiver or planning for the future, this guide can help you organize your thoughts, make sure that you're handling all the important tasks, and give you some peace of mind.  http://reversemortgagealert.org/caregiver-guide/


 The Caregiver Hour is a Tampa Bay radio (WHNZ 1250 AM) show which supports caregivers by providing encouragement, advice and helpful resources. Recognizing that many caregivers want to be authentic while setting healthy boundaries, the program seeks to guide them towards a place of purposeful wisdom. A place where they can look at the big picture and make conscious decisions rather than reacting to the fear and panic that often set in after someone in their life falls, becomes ill, or experiences another type of crisis.  thecaregiverhour.com/


The Caregiver Resource Network (CRN) is a collaboration of nearly 100 West Michigan organizations dedicated to providing for the needs and welfare of family and professional caregivers within the community that will improve
the quality of life for caregivers and their care recipients.  The award winning CRN website offers a wide variety of educational resources for family and professional caregivers including articles, fact sheets, and the free downloadable "Caregivers Corner" radio program. The CRN website is at www.caregiverresource.net


caregiversdotcomCaregivers.com  At Caregivers.com it is our mission to ensure that everyone has access to quality resources. Our caregivers blog is dedicated to supporting caregivers, family members and friends involved in elder care.  We cover a range of aging related topics that may be relevant to your users including dealing with Alzheimer’s, evaluating assisted living options, medical treatment options, elder law and patient’s rights, geriatric resources, caregiver respite and support. http://www.caregivers.com/



Carers Australia has collated an extensive list of resource materials that have been sourced nationally and internationally. They are for use by people who are supporting, or want to support, young carers in secondary schools. This may include school administrators, teachers, counsellors, support workers, parents and guardians. www.carersaustralia.com.au/about-carers/young-carers2/young-carers-in-secondary-schools/


caringdotcomCaring.com is the leading destination for those seeking information and support as they care for ailng parents, spouses, and other loved ones.  Their misssion is to help the helpers.  They equip the family caregivers to make better decisions, save time and money, and feel less alone -- and less stressed -- as they face the many challenges of caregiving.  https://www.caring.com/ 



Center for disease ControlThe National Prevention Strategy is a comprehensive plan that will help increase the number of Americans who are healthy at every stage of life. Created by the National Prevention, Health Promotion, and Public Health Council in consultation with the public and an Advisory Group of outside experts, the Strategy recognizes that good health comes not just from receiving quality medical care but from stopping disease before it starts.  www.cdc.gov/features/preventionstrategy/

caps for caregivers logoChildren of Aging Parents (CAPS) - the oldest US caregiving organization offering information and referrals, support groups, educational outreach, speaker's bureau and publications as it seeks to heighten public awareness that the health of the family caregivers is essential to ensure quality care of the nation's growing elderly population. 1-800-227-7294 www.caps4caregivers.org

FCAFamily Caregiver Alliance (FCA) - a public voice that supports and sustains caregivers throughout the country with information, education, services, research and advocacy. 1-800-445-8106 www.caregiver.org


flstatehomelogoFlorida State Homes has put together a library of articles about all aspects of the home buying, selling, and owning process -- written by their agents and local professionals including lawyers, mortgage brokers, appraisers, contractors, home inspectors, and other real estate-related professionals. http://www.floridastatehomes.com/content/article



dempseycancerThe Patrick Dempsey Center for Cancer Hope & Healing provides free support, education and integrative medicine services to anyone impacted by cancer. Since our doors opened in 2008, the Dempsey Center’s contacts have increased consistently, demonstrating the need for our services. In September 2012, the Center moved to a new location at 29 Lowell Street, Lewiston, to better accommodate the needs of those we serve in a more comfortable, private space.http://www.dempseycenter.org

Generation UnitedGenerations United - seeks to improve the lives of children, youth, and older people through intergenerational collaboration, public policies, and programs for the enduring benefit of all. 1-202-289-3979 www.gu.org


Mesothelioma Group Every year, 12.7 million people in the world learn that they have cancer. Even though cancer is a widespread disease, each individual who suffers from cancer is uniquely affected. Family and friends of loved ones who are fighting cancer are often confused and worried. It can be difficult to cope with a diagnosis of cancer. See more at: http://www.mesotheliomagroup.com/understanding-cancer/#sthash.OpKL5AvW.dpuf


logo mesotheliomaMesothelioma Prognosis Network - Advocacy group that works to inform patients, families, caregivers, and the general public about asbestos exposure and related diseases, such as mesothelioma cancer. Our organization provides free information and resources such as an online support group and Patient Advocates who are available 24/7 to provide assistance to those who need help. https://www.mesotheliomaprognosis.com/support/


Mortgage Calculator LogoHome safety can mean many different things; it means playing safe, eating safe, bathing safe and living safe. Keeping our homes safe will help to make them a fun and healthy place to bring our friends and family; but if we don’t follow proper home safety, we might get hurt or cause someone we love to get hurt. The following resources have important information and can help us learn more about home safety, so that we can all do our part to make our home a safe place to live and grow. www.mortgagecalculator.org/helpful-advice/home-safety-for-kids.php



seniorplanningMedicaid Guide: Senior Planning put together a comprehensive summary of state Medicaid programs for long term care. Each state has individual eligibility requirements that many people are unaware of. Surprisingly, through months of research, they've discovered this type of resource does not exist anywhere else on the web. https://www.seniorplanning.org/long-term-care-medicaid-eligibility/



mesoveternscenterThe Mesothelioma Veterans Center was created to provide information and assistance to veterans regarding treatment, clinical trials, and VA benefits for veterans suffering from asbestos illnesses. The MVC was founded by retired Navy LCDR Carl Jewett. Commander Jewett is a VA-accredited claims agent and has helped hundreds of veterans get approved for their VA benefits after developing mesothelioma or asbestos related lung cancer from their asbestos exposure in the military.  https://www.mesotheliomaveterans.org/



NACNational Alliance for Caregiving (NAC) - an organization created in support of family caregivers and the professionals who assist them; and to increase public awareness of issues facing caregiving families. 1-301-718-8444 www.caregiving.org




National Multiple SclerosisNational Multiple Sclerosis Society - helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward. 1-800-344-4867 www.nmss.org


nursinghomeabuseThe Nursing Home Abuse Center was founded in 2014 to shed light on a dark and horrifying happening in our culture — the abuse of our seniors. Our team, made up of healthcare professionals and advocacy communicators, was disgusted by this growing trend. Our purpose is to create the top online resource for exposing senior abuse. There are many senior abuse websites affiliated with law firms, unfortunately. We are not affiliated with any law firm or lawyer, nor do we refer our visitors to legal firms. https://www.nursinghomeabusecenter.com/

Logo for Medical Assistant dot netOnline Medical Assistant Programs. - has provided an extensive list of resources for all those affected by Alzheimer’s. From research to personal accounts, suggested activities to support networks, we have gathered all things Alzheimer’s. If you are looking for books, online resources, communities, and medical centers on Alzheimer's, then browse through the sites below to find what you need. Check out the "A Caregivers Guide to Alzheimers Disease "

aclstrainingcenter EditedPediatric Health and Safety Guide.  Parents, teachers, guardians, and even babysitters are all people who are routinely responsible for the care and well-being of children. Because both infants and children are not capable of making the decisions and taking the actions necessary to keep themselves safe, they are dependent on the knowledge and efforts of those who care for them.  https://www.acls.net/pediatric-health-and-safety-guide.htm


publichealth  Public Health Corps':  goal is to provide a hub of reputable and useful public information on health topics.  They apply library science and technical know-how to the public health sector to identify quality authorities as well as to track news and developments, and then organize it into handy references some of which we made available here ,  their website is http://publichealthcorps.org/.

recallorgRecall Report was created to alert the public to the latest information on dangerous drugs and products. With hundreds of suspected or confirmed dangerous drugs and products on the market, the up-to-date information we provide on recalls, alerts, and side effects is vital to keeping your family safe. https://www.recallreport.org/

rxdangersRxDangers.com aims to be your trusted resource, educating the public about all defective medical devices and dangerous medications that are available on the market today. They accomplish their mission by providing you with a one-stop resource where you can find comprehensive information about these defective drugs and medical devices. Their website is continually being updated with FDA Recalls and their goal is to spread awareness, creating a safer environment for all consumers. For more information visit them at http://www.rxdangers.com/

gogo chartersStaying Safe on the School Bus  Tips from GoGo Charters.  Riding the school bus can be an exciting way to travel to and from school. It can be fun to talk to your friends about school and other activities while you ride. While riding the school bus might be something that you do every day during the school year, it's important to pay attention to safety rules.   http://gogocharters.com/blog/staying-safe-on-the-school-bus

selfexam org SelfExam believes that the earlier you get help, the easier to overcome your problems and see better long-term outcomes. I think our mission coincides with yours. That's why I thought you might be interested with the resources I've researched. Our goal is for the site to become a go-to, health resource online. Click Here for Selfexam.org .. SelfExam also provided some pretty good sites here.


seniorlivinglogo SeniorLiving.Org - the web’s most comprehensive senior living guide aims to provide seniors, their families and caregivers access to free, high-quality information. They publish articles written by experts in the field of senior care, senior living and lifestyle. They also have a searchable database that enables seniors find care facilities in their area.

va badge VeteranAid.org - The Veterans Aid and Attendance (A&A) Pension provides benefits that reduce the cost of care for veterans and surviving spouses who require assisted living. http://www.veteranaid.org/


small veteran's affairs logoThe Department of Veterans Affairs  (VA) offers assistance to caregivers.  Caregivers provide a valuable service for Veterans and are "partners" with VA in providing excellent health care. Caregivers allow Veterans to remain in their own home and also play an important role in supporting Veterans who are hospitalized or living outside their home. www.caregiver.va.gov



The VFW’s National Military Services (NMS) is the driving force behind our troop and family support efforts. Home to the ever-popular, ever-vital VFW Operation Uplink™ program, the Unmet Needs program and the Military Assistance Program (MAP), NMS has made a significant impact in the lives of millions of service members and their families. http://www.vfw.org/Assistance/

Well Spouse Foundation - "When one is sick...two need help" is the slogan of the international support organization for wives, husbands and partners of the chronically ill and/or disabled. 1-800-838-0879 www.wellspouse.org





Internationational Carers Manual

The International Young Carers Manual is a 181 page document that provides a list of resources world wide.  According to the authors: " The purpose of this document is to create a practical, easy to follow directory of young carer programs internationally.  It aims to be a resource for individuals and organisations looking for innovative ways to support young carers who have a  parent with a mental illness and to facilitate the collaboration between agencies state wide, nationally and internationally. It became apparent that some countries have a minimal to nonexistent services for young carers, and this resource may be able to assist them with knowledge of what is possible and contacts of people who are working in this area on any specific program."

The Manual can be found here in PDF format.


Young carers: Social policy impacts of the caring responsibilities of children and young adults  (Final Report)  Social Policy Research Centre University of New South Wales October 2011

 In 2003, there were 348, 600 young people aged up to 24 years providing care in Australia:  170,600 children and teenagers up to age 17 (3.6 per cent of this age range).  and a further 178,000 young adults aged 18-24 years (9.1 per cent of this age range). (Australian Bureau of Statistics (SDAC), 2004).

The research in this report fills a critical gap in Australia, by contributing a theoretically-informed and policy-focused quantitative and qualitative study on young carers. The findings provide innovative contributions to theories of care provided by young people; evidence about the diverse socio-economic and demographic characteristics of young carers and care recipients, young people‟s pathways into care provision, and the impacts of caring on their education, employment, social participation and health; and the development of supportive policies and services.

The Report can be found here in PDF format.

Internet Support:
ZocDoc: Find Healthcare Providers by City & State

Making the Move to Assisted Living
Senior Health Resources
Boomer's Roadmap to Aging in Place
Guide to Senior Nutrition
Moving Tips for Seniors
Financial Resources for Seniors
Veterans Benefits for Seniors
Legal Planning for Alzheimer's and Dementia

Caregiver’s Guide to Understanding Dementia Behaviors

The Benefits of Cooking with Alzheimer’s: A Caregiver’s Guide

Six Things Seniors Can Do To Improve Memory

Preparing Your Home for a Loved One with Alzheimer’s

10 Easy Ways Seniors Can Boost Their Mental Health and Well-Being

Eating for Your Brain as a Senior

Overcoming The Loss Of A Child Without Drugs Or Alcohol — A Parent’s Guide

Mourning A Parent or Spouse’s Death

Promoting Mental Health at Home: How to Design the Perfect Meditation Room at Home


Books for Young Caregivers:  Novels about Mental Illness

Many of the main characters in these books are caregivers of a mentally ill parent or have, because of the illness, taken on responsibilities beyond what is typical for their age.

Brown, Susan Taylor, Hugging the Rock
Rachel and her father grow closer when Rachel's mother, who suffers from bipolar disorder, runs away from home. (Grades 5-8)

Fischer, Jackie, An Egg on Three Sticks
Abby's household gets more and more chaotic when her mother becomes mentally ill and is hospitalized. (Grade 7-up)

Haddix, Margaret Peterson, Don't You Dare Read This, Mrs. Dunphrey
Tish uses a journal to sort out her feelings, including her difficulties with a depressed mother. (Ages 12-up)

Johnson, Lindsay Lee, Worlds Apart
Winnie's mother becomes depressed after the family's move from Chicago to rural Minnesota. (Grades 8-11)

Marchetta, Melina, Saving Francesca
Sixteen-year-old Australian schoolgirl Francesca is in for a tough year when her usually optimistic mother, Mia, becomes depressed and fails to get out of bed one morning. (Ages 12-up)

Pearson, Mary E., A Room on Lorelei Street
Seventeen-year-old Zoe moves to a rented room when she can no longer cope with her alcoholic mother and the fallout from her father's possible suicide. (Grade 10-up)

Peters, Julie Anne, Define "Normal"
High school students Antonia and Jazz couldn't be more different, but their peer-counseling sessions help Antonia cope with her parents' divorce and her mother's depression. (Grade 7-10)

Powell, Randy, Run If You Dare
Gardner hopes to find some discipline in his own life while he watches his father's life succumb to despair. (Ages 12-up)

Quarles, Heather, A Door Near Here
Fifteen-year-old Katharine has her hands full: running the household, caring for three siblings, and concealing her mother's alcoholism. (Ages 12-up)

Rinaldi, Ann, Or Give Me Death
In this historical novel based on the life of Patrick Henry, his daughters, ages nine and sixteen, tell the story of their mother's mental illness and confinement to the cellar. (Grades 7-9)

Trueman, Terry, No Right Turn
Following his father's suicide, Jordan loses himself by joyriding in a vintage car. (Grades 8-11)

Warner, Sally, How to Be a Real Person (In Just One Day)
Eleven-year-old Kara wants no one, including her father, to find out about her mother's deteriorating mental health. (Ages 10-14)

Wilson, Jacqueline, The Illustrated Mum
Ten-year-old Dolphin and her teenage sister, Star, struggle to pick up the pieces while their mom, the charismatic, tattoo-covered Marigold, copes with bipolar disorder and a chaotic love life. (Grades 5-7)

Young, Janet Ruth, The Opposite of Music
Along with his mother and sister, fifteen-year-old Billy will do almost anything to save his father from a life-threatening depression. (Ages 12-up)

Zemser, Amy Brownwen, Beyond the Mango Tree
A white American girl living in Liberia confronts poverty and social injustice while dealing with her unstable mother, who is also severely diabetic. (Ages 10-up)

This reading list was compiled by Janet Ruth Young from the recommendations of librarians on the Young Adult Library Services Association book discussion list.


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